The Ministry of Lisa Copen

Lisa Copen, Founder of Rest Ministries which serves the chronically ill, shares about mothering, illness, ministry and more.

Archive for Health/Illness

October is Sensory Awareness Month

Vaughan: I love leaves!

October is National Sensory Awareness Month with the theme “Come to Your Senses.”

This is the fifth year that SIFocus.com will lead and sponsor this national campaign to raise awareness regarding sensory integration/sensory processing disorders. I am posting this because I am VERY familiar with SID or SPD as a mom of a child with sensory issues.

Read more about sensory processing disorder at SIFocus.com – In fact, if you know a child who cannot sit still, you may start reading about it for the child, only to discover that you have it and that is why you may do some of the things you do.

SI Focus encouragers people that October is the month for working within your own community raising awareness in your schools, among neighbors and within your family.

You can join their volunteers throughout the US and in Canada and England. Contact them at awareness@SIfocus.com and request one of their free Volunteer Packets. They will send you an electronic packet filled with ideas to raise awareness in your community, press release ideas, a fact sheet and more information.

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Is Fibromyalgia a Spectrum of Conditions?

flower3As someone who lives with fibromyalgia, it is my secondary illness. This means I was diagnosed with rheumatoid arthritis a few years before fibromyalgia and for me, if my RA is under “control”, the FM isn’t as bad. If my RA is flaring like mad, my whole body aches and a good portion of it is the fibromyaglia.

Last winter when I had a bad cough for a few weeks it was the fibromyalgia that was the worst part. In the midst of a deep RA flare, the cough tighened my chest and abdominal muscles and the fibromyalgia made each breath excruciating.

The Fibromyalgia Spectrum – Part of the Big Picture in Understanding Fibromyalgia is an excellent article over at ProHealth.com that I recommend reading if you have fibromyalgia or know someone who does. The author is Dr. Pellegrino and it is an excerpt from his  popular book, Fibromyalgia: Up Close and Personal. (Note: I’ve not read the book and so this isn’t a recommendation, just information.)

Dr. Pellegrino has seen more than 20,000 FM patients in his practice at the Ohio Rehab Center, but perhaps his greatest credential is that he has been a fibromyalgia patient himself since childhood.

He explains that there are “Eight Subsets of the Fibromyalgia Spectrum” and what they are. One is actually “Subset 8: Secondary Fibromyalgia Reactive to Disease” which is what one alternative medicine doctor told me once and I’ve never heard said by another doctor since.

He explains, “Individuals in this category have secondary Fibromyalgia. They have a primary disease (for example lupus, rheumatoid arthritis) – and Fibromyalgia developed as a result of this disease. People in this subset probably wouldn’t have Fibromyalgia if they never had the primary disease. The primary disease requires treatment, and Fibromyalgia may improve with this treatment. However, the Fibromyalgia often requires its own treatment, and can continue to be a major problem even when the primary disease is treated or is in remission.”

Wow! Validation. What a concept!

He writes in the article/book:

Today I’m convinced Fibromyalgia is indeed a “broader” condition with various subsets. I believe this information is helpful in explaining why everyone’s symptoms are different even though they all have Fibromyalgia. This chapter addresses how the Fibromyalgia spectrum is part of the big picture in understanding Fibromyalgia.

>I encourage you to read more

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