The Ministry of Lisa Copen

Lisa Copen, Founder of Rest Ministries which serves the chronically ill, shares about mothering, illness, ministry and more.

Scleroderma Has More Awareness with Dana Delany on Board

After dealing with a bout of cellulitius, I had a new perspective on just how painful scleroderma must be… and I'm not comparing the two as being equal. Sceloderma is an extremely painful, life threatening disease. But it reminded me of the kind of pain that people with scleroderma disease must fight every day.

I am glad to see Ms. Delaney say, her "most life-affirming role" was a lot less glamorous…"

Dana Delany joins the fight against hard skin illness – CNN.com.

BALTIMORE, Maryland (CNN) — Hollywood glitz may pay Dana Delany's bills, but her "most life-affirming role" was a lot less glamorous. Luke Evnin heads the Scleroderma Research Foundation, and actress Dana Delany is a board member.

In 1996, the Emmy Award winner and "Desperate Housewives" actress played a patient dying of scleroderma in the ABC TV movie, "For Hope."

The film was based on the true story of actor/comedian Bob Saget's sister, Gay, who died of the chronic, degenerative disease. "When you're playing someone who's dying, all you want is life," Delany recalled. "It really educated a lot of people about the disease, including me."

The role led Delany to join the movement to find a cure for the illness. Today, with scleroderma patient Luke Evnin helping to lead the efforts, Delany said that people are increasingly aware of the disease and working toward a cure.

Symptoms for scleroderma, Greek for "hard skin," can include skin thickening or tightness. It has no known cause and in most serious cases, it can be life-threatening. Scleroderma can cause abnormal growth of connective tissue and potentially harm blood vessels and internal organs.

More than 300,000 people suffer from scleroderma-related diseases, according to the National Institutes of Health. The disease disprop

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2 Comments»

  mumbirrix wrote @

Hi, I’m a new operator, virtuous registered on your forum. I assumption for your dispatch, I chose the chide area – this.
fine nominate – restmin.typepad.com.

  UniliCreple wrote @

Nothing seems to be easier than seeing someone whom you can help but not helping.
I suggest we start giving it a try. Give love to the ones that need it.
God will appreciate it.


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